Background: The Epidermal Growth Factor Receptor (EGFR) inhibitors, erlotinib and gefitinib, were introduced into routine use in New Zealand (NZ) for treating advanced lung cancer in 2010, but their impact in that setting is unknown. This study aims to understand the effectiveness and safety of these new personalised lung cancer treatments. The study protocol and results of the validation sub-study are presented.
Methods: This retrospective cohort study will include all NZ patients with advanced EGFR mutation-positive lung cancer, who were first dispensed erlotinib or gefitinib up to 30 September 2020 and followed until death or ³1 year. Routinely collected health administrative and clinical data will be collated from national electronic cancer registration, hospital discharge, mortality registration and pharmaceutical dispensing databases, by deterministic data linkage using National Health Index numbers. The primary effectiveness and safety outcomes will be time-to-treatment discontinuation and serious adverse events, respectively. The primary variable will be concurrent use of high-risk medicines with erlotinib or gefitinib. A validation sub-study was undertaken of national electronic health databases as the data source, and methods for determining patient eligibility and identifying study outcomes and variables.
Results: National electronic health databases and clinical records agreed in determining patient eligibility and for identifying serious adverse events, high-risk concomitant medicines use and other categorical data, with overall agreement and Kappa statistics of >90% and >0.8, respectively. Dates for estimating time-to-treatment discontinuation and other numerical data showed small differences, mostly with nonsignificant p-values and confidence intervals overlapping with zero difference.
Conclusions: A protocol is presented for a national whole-of-patient-population retrospective cohort study to describe the safety and effectiveness of erlotinib and gefitinib during their first decade of routine use in NZ for treating EGFR mutation-positive lung cancer. This validation sub-study demonstrated the validity of using national electronic health databases and methodologies to determine patient eligibility and identify study outcomes and variables. Study registration: ACTRN12615000998549.